Many times. Let me explain. On the blog, I allude to the fact that I am on the Autistic Spectrum Disorder scale. I’m at the mild end of the scale, but I am on the scale. It is classed as a disability under the UK Disabilities Act 2010.
Autism is still a much misunderstood condition. What annoys me more than anything is so called “experts” thinking they understand what goes on, pretending they understand the person with ASD, and then doing something completely the opposite.
One of the traits of ASD is seeing things through tunnel vision. Black or white, no grey areas. For example, if somebody says they will want to see me at, say 9 a.m. for an appointment, I expect some kind of prior message or email to tell me this is going to happen. What really puts me out is the person turning up without any prior notification. In this 21st Century world, we all have means of communication. Except it seems, to the person involved. I had this today where someone showed up, for an appointment, at 9 a.m. without any prior notification. I had just woken up and my mental equilibrium wasn’t at it’s best.
I had to turn the person away, partly because of the shock of them turning up and the fact I’m still under the weather. Luckily I’m not bed ridden with a real bad dose of flu, that would have been extremely worrying. Just a little notification by phone or message at the end of last week would have saved embarrassment for me and the person that turned up.
That single track trait I was talking about? No deviation at all. But how difficult is it for others to understand? To be honest, very few people do. I just go on, in my own sweet way, with most people unaware of what my everyday existence entails. They don’t have to live with ASD. I do. I thought by being diagnosed with this in January of this year, life would be easier. In fact, it’s a lot harder. A lot harder to convince people that I struggle with certain life skills, a lot harder to convince people that ASD is an underlying cause of my occasional depression and anxiety.
I felt I need to get this off my chest. I don’t think people understand, or they don’t want to. It’s all a bit of a game to some. Not to me it isn’t. I’m just bitterly disappointed that supposed people in authority don’t recognise what it’s like to live with an everyday condition, and then make other’s lives difficult. At times, ASD is in the background. Now, it’s back in the foreground again. To say I’m not happy today would be understating the case. Add to that the fact I’ve got a bug, and Monday is already a write off.
Sorry, but these things need to be said.
Allen Brooks xx